Testimonials

Helena and Dmitry, parents of a 2.5-year-old | Bay Area, California

Condition : G Tube Dependent

Our son Tim was 26th week micro-preemie, 2lb and 1 oz. weight. He had heavy strider and reflux. Nissen fundoplication surgery improved the situation with reflux and strider and he gained an ability to breathe by himself, without being dependent on machines supplying him with oxygen flow, and shortly after was released home.

Together with Nissen fundoplication, a G-tube was placed into Tim’s stomach (we were not even asked – it was a “package” deal with Nissen fundoplication). However, for...

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Amanda and Matt, parents of Mya (2-years-old) | Indiana

Condition : G Tube Dependent

G-tube_dependence_eliminatedOur daughter Mya was born at 37 weeks by c-section since she was breech. There were no complications with her delivery to speak of. At only a few days old we noticed that Mya did not show a lot of interest in breastfeeding or taking a bottle. Her weight was increasing and her pediatrician did not seem to be worried.

As time went on the resistance to the bottle grew. She would start to cry at the sight of a bottle and even cry when we tried to feed her. We saw a GI doctor and he said she was...

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Debbie, Mother to Andrew (16 months old) | Las Vegas, Nevada

Condition : G Tube Dependent

Hey there Moms!

My name is Debbie. My son Andrew is 16 months old. He was born full term and weighed 8Lbs 12oz, however he was born with congenital heart disease. At 2 days old he had his first open heart surgery to repair his Aortic valve.

At 7 weeks old he was still in the hospital and had not gained any weight. He refused to drink by mouth. Knowing he needed another heart surgery, we knew he needed to grow; therefore the next step was a G-Tube.

At 8 weeks old the g-tube was in place and...

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Amutha, mother of Shiva (3-years-old) | Austin, Texas

Condition : G Tube Dependent

My name is Amutha. My son Shiva was born premature at 24 weeks. Four months after coming home from NICU he developed severe oral aversion due to infant GERD. We had to put in a g-tube since he had not gained eight in four months.

Over the course of two years we worked with at least 5 different Speech Therapist , an OT , nutritionist and psychologist for his feeding. He did take 4 oz of yogurt with lots of distractions. Whichever way I tried the maximum I could get him eat was 400 cal orally....

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Manilla, mother of Nida (3-years-old) | Bay Area, California

Condition : G Tube Dependent

My daughter was a premie (27 weeks) and weighed 2 lbs. 4 oz. She had a hemorrage in her brain on both sides that caused hydrocephalus. She required a vp shunt when she was 3 months old and had 5 surgeries due to shunt malfunction and one time it got infected.

They started her on my breastmilk through an NG-tube when she was one month old. She could suck for 2 months. Half of the feeding was through a bottle and when she would get tired the rest would be fed to her through the NG tube. After...

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